The information on this
page could be used by parents interested in fragile X.
There are so many informative websites
that we thought it would be easiest to keep track of them on a single
web page. It is by no means an exhaustive list, just our favorites. A
linked index to content on this page follows:
We made a presentation about FXS to the
staff and teachers of our local elementary school. Please view the
video (.wmv
or .mov)
and download PowerPoint
presentation.
American Sign
Language
Signing
Time: Purchase DVDs and learn
how to sing and sign.
Best Buddies: Matches
students with intellectual disabilities with other students and
creates one-to-one friendships.
Fragile
X Listserv at Emory University: Learn
from and share with others concerned about fragile X. Send
email from your email address to listserv@listserv.cc.emory.edu
with the following in both the subject line and
body: SUBSCRIBE FRAGILEX-L myname (where myname is whatever
name you want to appear in the 'from' field when posting to the
listserv).
Family
Village: A global
community of disability-related resources.
PEAK
Parent Center: Works with
families and collaborates with state government and the education,
rehabilitation, and medical communities to make system changes
that improve outcomes for children.
Autism
Internet Modules: The
Autism Internet Modules were developed with one aim in mind: to
make comprehensive, up-to-date, and usable information on autism
accessible and applicable to educators, other professionals, and
families who support individuals with autism spectrum disorders
(ASD). Written by experts from across the U.S., all online modules
are free, and are designed to promote understanding of, respect
for, and equality of persons with ASD.
PECS (small pictures,
visual supports, to help communication and setup daily
routines)
Seaside
Therapeutics: Dr. Mark Bear
and Merck Pharmaceuticals are developing mGluR5 antagonists to
treat symptoms associated with fragile X; clinical trials in
people may begin in 2007.
Yellow
Pages for Kids with Disabilities: Find
special education schools, learning centers, treatment programs,
parent groups, respite care, community centers, grassroots
organizations, and government programs for children with
disabilities.
AutismSpeaks:
Their goal is to change the future for all who struggle with
autism spectrum disorders.
Scientific
Literature
Entrez: fragile X
research link to an integrated database that includes PubMed,
Nucleotide and Protein Sequences, Protein Structures, Complete
Genomes, Taxonomy, and others.
